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Old 03-02-2010, 11:09 AM
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Sparkledust Sparkledust is offline
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Join Date: Feb 2010
Location: Edinburgh, Scotland
Posts: 9
15 yr Member
Sparkledust Sparkledust is offline
Junior Member
Sparkledust's Avatar
 
Join Date: Feb 2010
Location: Edinburgh, Scotland
Posts: 9
15 yr Member
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Quote:
Originally Posted by pud's friend View Post
Been on Beta coming up a year now and the aches and flu have only got slightly better in the last couple of months. But the 'hangover' feeling and dizzyness the day after is still going strong.
Fatigued up the eyeballs.
I talked to an MS nurse today and (I'm sure she didn't mean it to sound the way it did) she said "You're not managing your side effects are you?".

It isn't that I'm not managing them, it's that they can't be managed and maybe it's not going to change anytime soon, I replied.

Edit; Welcome Sparkles ...
Hi, thanks for the welcome!
I phoned Rebif support yesterday and they told me Fatigue is a recognised symptom. She also said the fatigue could last 3 months, 6, or forever!
I also spoke to my MS nurse who said extra fatigue was unusual!
She urged me to stay on the full dose for another week, and if I still felt so bad she would reduce the dose to 22mgs.
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