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Member
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Join Date: Oct 2006
Posts: 371
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Member
Join Date: Oct 2006
Posts: 371
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Hi, I was wondering if you see a Neuro Muscular Specialist who has experience dealing with patients with MG?As this is very important.
Hadn't heard of Border line SFEMG. I always heard, either it is, or it isn't. But I'm certain technology is changing all the time.
I sometimes have a subtle change in my weakness, and sometimes have a huge change.
If the mestinon works for you, and it sounds like it does, you more than likely have Myasthenia Gravis. For which, I'm so sorry.
The dosages for each person is different. I was taking up to 5-60mgs daily, but it affected my stomach something terribly. Now, I take one or two a day. Mostly in the evenings, unless I have a medical test that involves me to be active in the morning hours.
Mestinon didn't work for me that well for double vision, but prednisone did, and does.
I hate seeing anyone be put on Prednisone, but it might be necessary. Also, they may put you on other MG meds, such as CycloSporine, Cellcept, Imuran, or Ivig, Plasma..etc.
Discuss these treatments with your doctor, and see what he says about them.
This may take you a while to get it all under control. Many of us are on a "cocktail" of drugs. And then it can take a couple years to get stablized, or where you and the meds are managing your symptoms to a certain degree. I wish I could offer you more info, but it really does depend on your body.
Much love and prayers
Lizzie
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