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Old 03-03-2010, 11:12 AM
PCSLearner PCSLearner is offline
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Join Date: Jan 2010
Location: middle of nowhere
Posts: 158
15 yr Member
PCSLearner PCSLearner is offline
Member
 
Join Date: Jan 2010
Location: middle of nowhere
Posts: 158
15 yr Member
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Feeling "more like normal" is music to your ears I'm sure!

That is a complicated cluster of variables: sleep, medication, time, and neurofeedback. Thank God one or some combination of these is working to help her feel better. This is an assumption, but I'm guessing you would like to know when some therapy could be reduced due to side effects and expense. At this point I would probably keep going with meds and neurofeedback for a couple of months or so? Then maybe drop one of the therapies at a time with at least a month between to see if there is a difference? OF COURSE see what your doctor thinks. I can not believe how many medications carry side effects that mirror symptoms of PCS. How are we supposed to know the difference????

Its a frustrating issue. Life keeps marching on and she may encounter a trigger, like going back to school, at the time you reduce one of her therapies so you will still not know definitively how effective it was. And then of course there are withdrawal symptoms to consider...ugh

My daughter is hell-bent to get off Elavil. I wouldn't care if she took 20 mg forever but she wants off and I have to honor her wishes to some extent. So she just went from 20 to 10. I don't mention it to her, but I'm basically holding my breath hoping she doesn't 1) experience increase symptoms from reducing meds or 2) doesn't experience a trigger that will confuse us as to how much the medicine may or may not have been helping.
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