Welcome, myeamans. You sound like you could be me, right down to every detail of tests (except for MRI), meds, and symptoms! I've been reading and asking questions here for a few months and still have so much more to learn.

The best thing you can do is make this forum your regular hangout place. Read, ask, give support, and even vent when you need to. You're not likely to find a simple answer and will have to spend a lot of time and effort learning about this condition. You will probably go through several more doctors and medications. You may get better, stay the same, or get worse, but whatever happens, there is almost surely someone here who has already been there. Please come back again and again to learn frrom and with these great folks here.

As for burning, another common tip is to soak in lukewarm water and Epsom salts. Not a complete cure, but calming.