Welcome
So sorry some things just can't be fixed. It has to be difficult in many ways, to say the least.
I went through 7 years of hell. No surgeries, though. I would be totally upset with all you've gone through and no better results. During those years I was not nice a lot of times. At times... well, it was bad. It will bring the worst out in you. It's crazy like that, I guess. We understand.
I dont know your condition but I'll give you our link to General Health Condiions and Rare Disorders:
http://neurotalk.psychcentral.com/forum2.html
There's lots of support and info here. We'll listen to you rant all you want. It helps.