To get seen and checked out by a good neurologist? Because a lot of your problems sound 'sensory nerve' related. Wether you go to a neurologist or a rheumatologist, make an appointment SOON as it often takes a long time to get an appointment.
In the meantime? See if you can get copies of any tests all the other docs have done...Just ASK for copies of tests results, and expect to pay anywhere from nothing to about $20. for each set. I'd get them and make copies myself & for the docs I see- it's cheaper and then I've got these gobbleydgook tests and results for my own perusal [and try to make sense of!]
Good luck and please don't give up! You should'nt have to lose your life, but fight for it and get it back. Hugs and hope 's - j