Hi Momof4, Welcome to NT! Isn't it a wonderful family of caring, compassionate, friends. I've had RSD 15 years following breast biopsy. After over a year of pt and massage therapy for frozen shoulder, I had over a year of remission. Then it went to other side like they said it might. Another year of therapy and a 2nd year of remission. Then while water skiing felt a pull in original hand. RSD used to be called hand shoulder syndrome. In my 4th year I was diagnosed by a hand ortho surgeon. more pt, tens unit. the hand is 50% paralyzed. Then it spread to other hand both feet and legs, full body and now internal pelvic area. I used to have electric shocks, jolts-full body thru the brain-very scary. I was on 3200 mg of neurotin and other meds. I gained weight on neurotin and asked to go off. My Dr. gradually reduced the med and I've been off for a year and half. I've had shocks about half dozen times. So I feel that is a calming effect. I've gone from two different antidepressents double and triple dosed to 120 mg of cymbalta My two high blood pressure meds have been reduced. My pain med of vicodin has been reduced from 6 to4 as well as anti anxiety med reduced from 6 to 4. I went off ambien cr and it wasn't working at all. Wouldn't go to sleep till 5-6 a.m.
Put me on a study of 200 people for seroquel xr which just was approved by the FDA for an antidepressant. I'm sleeping 10 hours with it. He just reduced it from 300 mg to 150 mg. I was feeling I didn't need 300.
The worst part now is the internal burning pain in the pelvic region. I live in Arizona and am already worrying about the summer. I also have fibromyalgia and trigeminal nerve disorder along with ptsd.
Have you read Dr. Hooshmand's website: rsdrx.com He practiced for 40 years in Florida. His website is still up and very informative. His theory is against opiods and using other meds for pain. The part called puzzles list has 146 questions and his answers.
Take care, and let us know how you are doing. One of your new friends, loretta with big soft hugs