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Old 03-03-2010, 11:05 PM
dahlek dahlek is offline
Magnate
 
Join Date: Aug 2006
Location: metro DC suburbs
Posts: 2,576
15 yr Member
dahlek dahlek is offline
Magnate
 
Join Date: Aug 2006
Location: metro DC suburbs
Posts: 2,576
15 yr Member
Default OK You have someone starting the whole diagnostic process...

Is GOOD? Just a bit of patience is needed, no REQUIRED thru the whole process. I say this from experience. YES! We all want tests done at once?! Yes we all want ANSWERS at once?! It just does not happen that way.
By calling often, not essentially daily, you are polite, concerned and scared... convey that and ask IF there is a possible cancellation, but that you'd need 48 hours notice...as you mite have to cancel other appointments to 'make it'. This isn't unreasonable and should/could be accomodated.
As for doc scheduling? I've one doc who I can schedule twoplus years ahead? Another that I can do 18 months ahead and others? Only 4-6 months if lucky. Depends on the docs, their schedules, their 'agendas' [such as retirement or other evils?] and their computer capabilities.... Kind of kinky if you really think on it? Who's the most 'tech savvy'? And, then, does it matter? Or more...should it matter? Sigh. Too complex for this time of day!
IF you've GBS? It should show up in the conduction studies and the blood and spinal work. Once it's gone on a while? Then you go to the 'chronic' aspects which can become C[hronic] I[nflamatory] D[meyelinating] P[olyneuropathy] And don't let any doc put you off on this? CIDP can be devasting w/o good treatments.
This web site [which other great searchers had found?] is a solid, respectible and good research site.... http://neuromuscular.wustl.edu/alfindex.htm
Go thru the index? And then focus on what symptoms are rite for you...then Appreciate the 'whole menu'. It is vast and we can't blame docs for not instantly recognizing some medical issues. Other times? Well, don't get me started.
DONT give UP! Got that? Go get diagnosed if you can, and then get some treatments, but KNOW what they mite entail [good and bad?] as well.
Hugs 's and hope and soon! - j
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