Hi Susan,

I'm so sorry to hear how much pain you're in. I had to have a series of 5 blocks, these are Stellate Ganglion Blocks, for my one arm. It helped VERY much! Did you have Stellate Ganglion Blocks, or Epidural Blocks? The SGB's are used mainly (if not only) for RSD. You need, usually, several...not just one or two.

Have they talked about trying you on Lyrica? It's a newer form than Neurontin. Less side effects, I think. Did you give it some time? What about Cymbalta? Or, another antidepressant that helps with pain?

I agree also that Baclofen helps tremendously, too. It's for spasm. Keep reading here on this site. There are so many different methods that people talk about here that have worked for them.

I agree with an earlier post that you definitely need a Pain Mgmt Doctor. Regular doc's....or Orthopedics...just don't have the expertise to work with RSD or any other chronic pain condition.

Don't give up hope! We're here for you!

Let us know if you ask your doc about a referral to a pain mgmt doctor.

(((hugs)))

Denise