Hello and welcome to NT!
I am sorry for your injury and for the way that you are being treated by the medical system. Like most of us with TBIs, you've already learned that you will have to be a strong self-advocate if you are going to get the care you need and deserve.
Congratulations on having the initiative and smarts to get in touch with the Brain Injury Association in your state. Other excellent sources for information include
www.tbiguide.com and our own TBI forum here on NT
http://neurotalk.psychcentral.com/forum92.html If that's too much reading, there are a number of excellent Traumatic Brain Injury (TBI) videos on You Tube. (Who knew it wasn’t just idiots surfing on cars?)
Cheers