Quote:
Originally Posted by sk8ter
Hi I have been on LDN for months. When I first came down with the frozen shoulder that started this I was put onit. I started very low. Compounded by McGuff pharmacy in California. It needs to be done by one of the pharmacies listed on the lowdosenaltrexone.org site. I have mine done in a liquid to titrate. It took 50% of my pain away over night and that is when I was systemic pain. All I can say is it has helps calm this. The Lyme disease community and autism/fibro/MS people all use it .
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Hi sk8ter: My daughter has RSD. She lives in OC. I do all the research as she is in a complete state of fear right now. I had taken her to a wellness doctor to try something different than nerve blocks and ketamine (they don't seem to work very well for her, and the pain specialists are trying very hard to insert an SCS already). He had prescribed naltrexone in pill form and also wanted to do DMSO IV's. She had started taking the naltrexone. Unfortunately, the pain specialists convinced her this doctor is a quack and now she is scared and won't take or try anything coming from him. I do believe that the naltrexone was helping her but she didn't stay on it long enough. I need to be able to convince her to try it again for a longer period of time but I need support and apparently you live in OC also, CA. How come nobody is talking about DMSO?????? Can you explain to me what you mean by you have it done in a liquid to titrate? Maybe that would work better for her. Who is your doctor who prescribed it? Can you tell me? Is it allowed on this site? I am new here, but will try anything to help my daughter who has a 5 months old baby (was diagnosed during pregnancy)