You don't mention whether you are mobile or not. Do you have a GOOD PT? That you trust and that knows RSD? You might want to try to work in a warm water therapy pool with a therapist. Or even by yourself to get rid of that awful frozen pins and needles feeling if you can tolerate it. Maybe moving your limbs (gently!) might be half the battle in getting some circulation back to your legs and having them feel better.
I've have a lot of trouble with my legs as far as spread and pain and burning and swelling, etc. But because I continue to walk a lot I've managed to keep my symptoms somewhat controlled. That, and lidocaine infusions have helped too, I think. I just can't get them often enough, close enough together, to really keep me comfortable all the time. And they only work about 30% of the way. But they are better than nothing.
So sorry for your discomfort. And I can identify with the fear of not knowing what specialist to call. I really hope you feel better soon.
XOXOX Sandy
Quote:
Originally Posted by daniella
Hi I never know which board to post here or PN since I have both but this seems like maybe RSD symptom. Anyhow my worst of the pain is the left inner ankle/foot/calf but it also spread to a lesser degree in the right. Well last week I tripped but did not fall or twist anything but I am sensitive like a touch I can't tolerate other then by myself. Anyhow since then my right leg is the worst it has been in 3 years and feels like my left. The calf/behind the shin is so tight and the pain goes down to the inner ankle/foot. The calf feels like it is stretching and no circulation. In both legs from the knee to the feet I am getting the tingles/pin feeling.The feet again are feeling like if you were in the snow and then it was defrosting plus they were run over. I had this in the feet before but not from the knee to the feet. I am really scared at this new developing issue and how much pain I am in especially since I was making slow progress. I have had all the diagnostic tests and seen many specialists. I still feel like their is a missing piece with the combo of my eye pain and head pressure but it is not a migraine and no auto immune. I am not sure who to go to other then another pain doc but I am very concerned and in so much pain.I have seen a few rsd pain specialists and had a few procedures like blocks etc that increase my pain so now am back on non narcotic meds like neurontin. It is hard to know with my right leg for ex if I did something to it or this is RSD or PN. Can anyone give me any insight? Thank you
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