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Old 03-05-2010, 06:23 PM
roadracer roadracer is offline
Junior Member
 
Join Date: Jul 2009
Posts: 69
10 yr Member
roadracer roadracer is offline
Junior Member
 
Join Date: Jul 2009
Posts: 69
10 yr Member
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I am undiagnosed as far as a genetic disorder, but might have a connective tissue genetic disorder. I dont know much about ehlers-danlos, other then the symptoms are similar to marfans.

I am 25, and was dx as hf autistic when I was around 6 years old. I have always had speech disorder/communication issues, and also was dx with learning disabilities and some other stuff as a kid.

I have heart valve prolapse and regurgitation, some bad hypermobility and some muscle tone issues, nerve damage in my feet, hands and wrists. Knee and back pain issues that might be related.
Well, thats just a few things, I have a whole lot of issues, I could make a pretty long list.

Despite all that, I am very athletic, am a cyclist and race at the cat1/pro level It is my medicine for all my issues (although there is a chance I will have to give up racing if I find out I have something that affects my heart more then was thought )

Anyway, I have just been learning all about the connective tissue genetic disorders and the possibility that I have something like that. Over the years, I have never been to a doctor who has been able to put everything together yet.
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