It is wonderful that you are working with J. Hopkins I here they are one, if not the best PM Dept in the country, but please read all you can on the SCS Device. I do not have one but I have read and heard not the greatest things about them. Just be carefull.
I have RSD for 6 years and have done it all but the SCS, stellate blocks,epiduarls, freezing of certain nerve,medications of all kinds, 3 - 5 day in-patient ketamine procedures, I have seen Dr. S. on many occassions, and I work with the Hospital for Special Surgery another great facility.
There is a world of info. on the net just google SCS.
Good Luck and I wish you the best.....
Gabbycakes
Quote:
Originally Posted by kim ames
Hi everyone!
I finally was seen at John's Hopkins Univeristy yesterday. YAY! They want to install a SCS next month and also want me to be a "trial" patient for them!
Want me to be their example of what does and does not work for RSD. I was very happy to know that all of my doctors are experts on our condition. I was taken very care of and treated with utmost respect. It was tremendous! I now have a new respect for doctors who actually research different conditions and seek the best treatment for their patients. Just incredible!
I am still a bit leery on the legality of it all. They will compensate me. Which I don't worry about (I would rather do it to help someone), I know it will be public. (No problem). No meds will be given. Still; there is a nagging doubt. I think fmichael would really help me with this!
Hope all goes well!
Kim  |