Quote:
Originally Posted by myeamans
Hi. I ran across this website and I was wondering if anyone could offer me any advice. I have horrible burning foot pain. I went to my doctor got diabetes test, lupus, lyme disease, vitamin definicency, etc. went to a gastrointestinal doctor and had some kind of sugar test, and some scope thing to see if I had celiacs, then I went to a neurologist and had nerve conduction and EMG plus a MRI of my back. Tomorrow I see a vascular surgeon to see if he can offer some help. Some people say it's a neuropathy, some people say maybe its circulation issues. I changed socks, shoes, started vitamin B shots, lots of things and I get no relief. The neurologist says that they think its small fiber neuropathy and nothing came up on the nerve conduction or some other test they did. They will do a skin biopsy. I also get really dry mouth, lightheaded a lot, I bruise easily and I tend to get out of breath easily even though I don't smoke and I'm a runner. (These things may be unrelated, who knows) Anyway, I need some relief, I can't stand it anymore. Do you have any ideas on what I can do, or who I can talk to? By the way, I tried Neurontin and it's horrible side effects, I'm on cymbalta now but only for about a month so I don't know if that's been enough time to start working yet.
Thanks so much in advance for any advice!
|
Hi myeamans,
Sorry about the burning. It's not fun. I have it too, although I don't notice it until I've been walking for about an hour, so I think I'm one of the lucky ones. However, then it's bad. I'm on Lyrica - tried getting off it once (weaned, very very slowly) and was okay for a while then hit a wall of not being able to move. Tried Neurontin. Nada. Went back to Lyrica. Bliss. (Well, relatively speaking.) Regardless of what the docs say about vitamins, I'd sneak in some more Vitamin D3 (I take about 5,000 units a day - for the first time in about five years my joints don't hurt all the time -- go figure). Actually, my levels were low and if I did the conversion for the Quest results (they were off by a factor of 1.3 I believe) they were even lower than what's now considered optimal levels. You can check this in a number of places on the web. As far as the endoscopy for celiac disease, my cousin, whose daughter has it, was tested for it and even though the endoscopy is considered the gold standard, she had it done three times before they finally "discovered" the villi that had been damaged. Try going without wheat, rye, and barley for about a week and see if you feel any better. Can't hurt.
Sorry I don't have more info for you, but I have to say I agree with much of what's said on these boards: you've got to be your own advocate and your own diagnostician. You know best what your body feels like. Don't let any doctor tell you otherwise!