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Member
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Join Date: Aug 2009
Location: Tucson, AZ
Posts: 466
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Member
Join Date: Aug 2009
Location: Tucson, AZ
Posts: 466
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I have not tried for disability yet. I am still having a hard time accepting that I need to - I am very independant and proud to take care of myself and my family.
I keep hoping I can work more, but just can't work more than about 12 to 18 hrs a week without ending up in bed for a few days and sometimes for a week. This week I pushed myself and I think that I am going to pay for it during this upcoming week. I hate MG.
My savings account keeps dwindling so I need to do something.
My doctor said that my MG isn't bad enough to get disability...but then again he only sees me when I at my best and has never seen me when MG gets bad. How much does doctor opinion matter when applying for disability?
I can see that I will never get better, MG won't go away, so I need to do something. If I knew anyone in my/our situation, I would encourage them to apply for disablity knowing they deserved it. Why can't I see it that way for myself?
I am going to find the website and apply online. Let me know how it goes for you.
I can relate to your finger problems. Funny how my thumbs and index finger are rarely effected by MG but the rest of the finger are. Is it that way with you?
My voice is terrible too, I so much dread needing to make phone calls for my work and schedule phone calls during my best time of the day so people can understand me. Sometimes I don't answer the phone because I can't speak very well.
I hope you are feeling okay today.
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