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Member
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Join Date: Oct 2006
Posts: 371
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Member
Join Date: Oct 2006
Posts: 371
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Hi Lauri 
I don't think it means it won't work, it's sounds like you have lot going on in your body, and with your meds. I have met MG'ers who took Mestinon, and it did nothing for them, and they were sero positive, so the MG diagnosis wasn't a question. They got on prednisone, and other immuno suppressant drugs, and those worked for them.
You said you had an increase of Imuran? I had a horrible experience with Imuran, it made me violently ill. It's possible it could be doing it, and it is also possible that the decrease in the Prednisone is making you ill. You have some serious variables that can be causing you to feel so bad.
And I would guess, it would be hard to tell if Mestinon was working with all that going on.
Hang in there, and take it one step at a time.
You have a lot on your plate right now, and I do understand you not wanting another AI disease, but the possiblities of having more than one, are pretty high. "They tend to like to hang out with each other"
Best of Wishes
Much Love,and Prayers
Lizzie
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