I applied in the Fall of 2006 and it was a TOTAL nightmare. I COMPLETELY qualified according to the SSA website --
www.ssa.gov -- and was denied the first time. Here is what the website says about qualifications for MG:
11.12 Myasthenia gravis. With:
A. Significant difficulty with speaking, swallowing, or breathing while on prescribed therapy; or (ME!!!!!!!!!!!!!!!!)
B. Significant motor weakness of muscles of extremities on repetitive activity against resistance while on prescribed therapy.
The SS counselor who was assigned my case in Nashville was as confused about the denial as I was. He said that a SS doctor had been responsible for my rejection and that a different doctor would see my case on the second go round. I did research -- took NO chances -- contacted ALL of my legislators (state and national) AND got a lawyer with a GREAT % record. The legislators have a form that you fill out -- and SS is required to keep them apprised of your case status EVERY week. I also (on my OWN dime) took myself to a speech therapist and got a written report (cost about $110, I think). My lawyer expected -- actually WANTED to take me before a judge -- wanted the judge to HEAR my pathetic voice. But, I was approved within about 3 months of my second filing. HUGH sigh of relief!!
I do have to say that I recently found out that MY state has the highest denial rate IN the nation at the first and second levels.
Be prepared -- the stress was the WORST of my life -- my MG was the WORST it has EVER been during this period. I couldn't work -- could barely get out of bed -- had NO idea what the future would hold -- I was a mess -- mentally AND physically.