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Originally Posted by nanapickle
I am hoping someone can help and explain Rsd questions.
Had Surgery both feet at the same time Nov.2009 Heel spurs and plantar fasciitis. Since June I had 9 shots in my feet and one in each ankle for a total of 11. The last 4 was after surgery. I told her I was getting worse. I was on steroids 3 times. 3 month of diclofenac.after surgery. Pain pills non stop. After surgery I told her when I went back that my feet really hurt, the heel are numb and I am in worse shape since the surgery. She said she was no worried about the numb feet. So she sent me for a nerve and muscle test. They came back that I had a problem. The neuro. said I had tarsal tunnel and it was her problem. So I went to her more shots and pills. But I was not happy with her so I changed to a new foot doctor . He is now running blood test and sent me for a bone scan. I had a copy of the bone scan sent to my house, It said I should follow up with RSD.
So I'm taking ultram and it is not working at all. The pain and swelling plus the burning is in both of my feet and ankle area. Since the nerve test my right thigh will not stop burning. I was wondering if I had surgery some time in the future will it start burning and swelling there also. Or if i get any type of injury will it spread?
Hope I get answers from the doctor on Wednesday. But I thought I might get help from people who suffer my RSD.
!2 years ago I had surgery the accessory nerve went crazy. It was shoulder surgery. It made my neck pull to the tight they did say rsd. They also said dystonia. I have been going to a chiro. for many years. He seems to help.
That problem seem to slow down but I'm worried if it will once again act up. It has always bother me like a tooth ache. But you go on. But the feet it is harder because I need them to walk. What are the best pills?
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Hi Nanapickle, I'm sorry for your situation. It sounds like you are saying you were diagnosed 12 years ago following shoulder surgery. Rsd can calm down or even go into remission, then with new injury, surgery, or even an injection or blood draw, it can cause it to come out full blown.
It's always recommended to never have surgery after being diagnosed with RSD, unless life threatening. If absolutely necessary, there are preventive procedures, which RSD specialists work with the surgeon ahead of time.
It sounds like you are having symptoms of RSD arise following the surgery.
You definetly want a RSD Dr. to treat you. You can go to RSDSA.com and put in your zip code for close RSD Dr. or support group, A good site with lots of questions 146- and the Dr. answers is rsdrx.com Go to puzzzles list. Dr. Hooshmand spent 40 years in rsd and is now retired, but has his website up and also a referral to another Dr. in Florida.
Let us know how you are doing. When I was diagnosed in another state, I came back to Arizona and found good neurologist and good orthopedic dr. who had a physical therapy group that knew RSD. It's been 15 years and have use of both feet and one hand and 50% use of other hand. A couple years ago, my toes started curling up off the floor, my neuro gave me exercises to do everyday in the pool and after 4 months, they were touching the ground again. I'm very grateful to have full use of my feet. The one hand had wrong diagnosis and delay of pt treatment. For me, massage therapy was a lifesaver to my limbs and body. Also very important is desensitization.
Take care, one of your new friends, loretta with big soft hugs
