Quote:
Originally Posted by kim ames
Hi everyone!
I finally was seen at John's Hopkins Univeristy yesterday. YAY! They want to install a SCS next month and also want me to be a "trial" patient for them!
Want me to be their example of what does and does not work for RSD. I was very happy to know that all of my doctors are experts on our condition. I was taken very care of and treated with utmost respect. It was tremendous! I now have a new respect for doctors who actually research different conditions and seek the best treatment for their patients. Just incredible!
I am still a bit leery on the legality of it all. They will compensate me. Which I don't worry about (I would rather do it to help someone), I know it will be public. (No problem). No meds will be given. Still; there is a nagging doubt. I think fmichael would really help me with this!
Hope all goes well!
Kim  |
Hi Kim, I hope whatever your decision, it's one you make with the fullest knowledge possible. I personally know someone who is happy with his SCS, but didn't have RSD. I personally would not risk the surgery as I have full body generalized, SIP and now have internal pelvic pain. The internal burning and red hot burning skin is unbearable. I would never want that to happen to anyone because of surgery. My original cause of RSD was surgery and then continual spread over the years. Take care. Let us know how you are and what you decide. Your friend, loretta with big soft hugs
