Quote:
Originally Posted by bozena115
Hello again,
Although there is nobody here to give me answer I can write anyway.
As I wrote I have pains since very long time. I had some painkillers they did help me for few years but now I have nothing more.
My pains are worse after the food. The pain starts in the right jaw bone, goes direct to the right eye and to the right ear. I had so many doctors visits and so many examinations and don't know what to do next.
Lately Nephrologists found November 30th, 2009 that I have chronic kidney disease. Beside that since January 2009 I have high blood pressure: 180/120. My weight is bellow 60 kg and I am 165 cm tall. It is long time ago, that I was fat for only 2 years and no more.
What is strange in my case, my haemoglobin is so high coming almost to the top (now 148). My doctor told me that is good for me to have such a good blood. I am not sure as I had always haemoglobin 120 and a bit more.
I can suffer all but can't suffer steady bite in the right eye.
Beside all pains my face is changed as that is not me.
Is anybody in the world to have the same pains as I have?
B.
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Are you still on this forum? It seems not a lot of people have written recently. Yes, I have the same pain as you except on both sides of my face. I have been diagnosed with Trigeminol and Occipital neuralgia. They put me on Neurontin, Klonipan, Lyrica, and Amexociphan (sp?- for TN). The meds helped at first but the pain just continues to get worse and worse in my face.
One doc. told me that means something neurologically is wrong. They are checking my blood for a variety of things right now. That change in your blood could be a good hint as to what's going on. Any change that dramatic is a signal you need to find a doc that cares about you enough to invest their time into researching and asking around in their network.
Anything new since your post? Do any painkillers help? I can't believe how excruciating the pain is.