I am getting better at realizing my signs. But I feel much better. My specialist just came by to see me and he thinks my mg is still
good and it is something else with my heart that is doing this. So today I'm
meeting alot more doctors.
I'm still
having trouble being able to talk alot. While talking to dr. Juel I had to stop and take breathes and still just weak. We might b doing plex.
Thanks.
Quote:
Originally Posted by AnnieB3
Tyson, Well, the problem with saying that "you're better" with MG is that the reality is you can always get worse. It gives a patient a false sense of security.
I'm sorry you're in the ER. Not a fun place to be but the best for you right now. I'm glad you went in. Hey, at least you're getting really good at listening to your instincts! 
Maybe they can hook you up to an ECG to see what happens to your heart when you're bad off. I was thinking that a holter monitor or even monitor might be what a cardiologist would order. That's what mine did in addition to an echocardiogram.
I hope they can figure out if you have too much of this or not enough of that or whatever. I suspect it was the exercising though that pushed you too far. I simply socialized two weeks ago for a couple hours and my tongue/neck/jaw has been bad ever since. It's hard to predict sometimes what muscles will get bad, for how long or how quickly. This disease sucks.
Hang in there. I hope you keep getting better.
Annie |