Quote:
Originally Posted by kim ames
fmichael...
Do you have any experience in SCS? Or trials? JHU wants me to be their trial on the benefits of SCS and install a trial on April 16. I need to meet with them four times in a 16 week period. I am the first candidate. Any advice?
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Dear Kim -
No personal experience, sorry. I never got beyond a TENS unit myself. And from what I understand, they stop working for everyone in about 3 years or less and have to be taken out. Some much sooner. The only really good thing I've heard about them is that in a Sandinavian study, they were able to put kids into complete remission with them, but if anyone is going to come out of this, it's usually a kid anyway.
If you use the search function looking for thread with SCS
in the title, I'm pretty sure you'll pull up a boatload of experiences.
This is a study you may want to look at, van Eijs, Smits H, Geurts JW, et al
Brush-evoked allodynia predicts outcome of spinal cord stimulation in Complex Regional Pain Syndrome type 1,
Eur J Pain. 2009
FREE FULL TEXT at
http://www.rsds.org/2/library/articl...JPain_2009.pdf in order to see whether you may "fit the profile."
That said, I seem to remember seeing something about how the folks at JHS were using SCS to advance an "on/off" paradigm of CRPS but I can't find it off hand. I'll let you know if I do. Good luck!
Mike