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Member
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Join Date: Jan 2008
Location: Southern California
Posts: 308
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Member
Join Date: Jan 2008
Location: Southern California
Posts: 308
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You can try to find someone locally to do it - and it should be covered by insurance. If you want to pay out of pocket and get it done like NOW - then you can travel out of the country (Poland is doing it now). Natalie found someone locally, so we know it isn't impossible. Check out the TIMS board on the topic (www.thisisms.com - they have an entire forum on CCSVI). Stanford has put a stop on the procedures, as they are gearing up for a trial at some point in time (no dates released yet)...and Buffalo is only doing testing at this point, though I just read that they paused that, too.
I definitely think it may be worth looking into - some people have seen fabulous results (barring the 2 people who died after the procedure). I almost went up to Stanford last spring, but am so dang happy with the HiCy, that there was no need. I'm not 100% convinced it's the 100% answer for MS, but some people are. It does not take into account any of the auto-immune issues present in MS.
Just a word of caution on the TIMS board - they seem a little nutty (some of them anyhow). Many there are certain there is a conspiracy with the MS Societies and big pharma to block CCSVI from happening/moving forward. However, some of the stickies have good information. I like to read the conspiracy thoughts...they make me giggle. LOL 
Good luck and keep us posted!
~Keri
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