[QUOTE=lindylanka;630467]Budgies, I do not remember seeing your name before, if you are new to the forum a big welcome, if you have been a lurker thank you for coming into the light, this is a great place to be!

I tried to find the article you mentioned and could not find it online. It IS depressing to read of something like that, but it must be remembered that IPD is one of a spectrum of parkinsonian type disorders, and different people at different times use PD to describe almost anything in that spectrum. IT does sound as though what you mentioned is in all probability a parkinson's plus disorder, or possibly something like LBD which has similarities with them. At any rate it is atypical to progress that fast.

When I hear of people who are suffering from that kind of very fast progression it makes me a bit more determined to do what I can to move an understanding of PD forward, not in terms of medical definition, but what real people experience. It is my belief that when the mysteries of IPD are unravelled and understood treatments for the other disorders on the parkinson's spectrum will rapidly follow. OR perhaps it is one of the other disorders that will provide the key, but either way it is the real people who need to be studied, with open minds, and fresh thinking.

The really depressing thing is that there have been very promising treatments that never made it past the post, and other treatments that are just a re-hash of old ones that do.........

Hi Lindy,

Many thanks for your kind response to my posting.

Unfortunately I was unable to connect to the link you sent, as when I clicked on it the usual "Error" page came up, so I can't tell you if that was the article, but I very much doubt it.

I AM new to this site, but will not be a stranger to it any more, as I'm sure to be needing support from now on, so many thanks for yours.

Kind regards.