Joan Marie,
I don't think they have tested me for Alpha 1 deficiency. How do they test for that? My lung issues are what the Drs. believe is a result of a medication I was on called Agrylin. I have been off of it for over a month now. My Hemotologist told me this morning he called the pharmacutical company and they were very guared in admitting any kind of guilt. They said I fall into a 1% as far as developing ILD from it. He said he insisted on answers and asked them was this reversible or would I have it forever. They told him they didn't know because they have had reports of diagnosis but never any long term follow up. Very frustrating!!!