 |
Member
|
|
Join Date: Oct 2006
Posts: 371
|
|
|
Member
Join Date: Oct 2006
Posts: 371
|
Hey,  I'm so sorry. If you don't think your MG is mild, then it probably isn't. And all this added stress can't be helping it either. I think you should go for the disability as well. And that's a great idea about writing down everything. I don't really know how the Social Security disbility works. I too have never applied. I think there are web sites where all is explained. Trying googling it.
The next time you go in to your doctor, try to tell him in very plain language that this is weak, that is weak, I can't do this with out this happening..etc.
And ask him somthing like, "you know, you said once, you thought I had mild MG, I don't think it is still mild at all anymore, I'm very weak all the time, ...etc.."
Stuff like that. So he really understands what is going on.
Do you have someone with whom you can take, some one you can say, please don't let me forget to say this, or that. Sometimes,two are better than one.
Take someone who has seen how weak you get on a daily basis. I'm thinking you need some back up.
Wish I could give you a real one, but (((hugs)))
Keeping you and your situation in my prayers.
Love Lizzie
|