(((Dej))) I am going through the same thing right now. Symptoms and no set answer, just a take this pill and we'll see you back in 6 weeks. I too want to know what I am fighting so I can fight more effectively and efficiently. I get tired of the floors dropping and my brain quaking/shifting.
While we like to hear that good news of no progression, we also like to know why the symptoms are acting up and what we should do about it. What you are feeling is perfectly normal right now, as upsetting as it may be.
I don't have much advise, just hugs and prayers that you start feeling better soon.