How lovely to meet you. Your English is fantastic so don't panic! I couldn't write to you in Finnish so don't apologise!

IVIG or Plasma exchange isn't common here in the UK either. Its used for mainly people who are in crisis or people who do not respond to any other medication. The reason is its very expensive and they try to limit its use to patients with cancer.

Im so sorry you are having such a tough time at the moment. I think pretty much all of us here can empathise with you regardless of the severity of our own conditions. Most of us at some time or another have had to deal with the anger, sadness or depression that engulfs you when dealing with a chronic illness that can be so misunderstood by the medical profession and family / friends.

Thank you for joining us and sharing your story.

Love
Rach