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Old 03-13-2010, 12:58 PM
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neutro neutro is offline
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Join Date: Nov 2007
Location: France
Posts: 346
15 yr Member
neutro neutro is offline
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neutro's Avatar
 
Join Date: Nov 2007
Location: France
Posts: 346
15 yr Member
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Hi Dreamer, welcome to this site!
I would like to add something to Lizzie's post: recently I had to be admitted to ER because I couldn't breathe due severe swallowing and respiratory problems from my MG and from a bronchitis. They put me on oxygen (10 liters/min to start down to 0 when they released me from the pneumology dpt after a week). I discovered that some weaknesses from my MG rapidely almost completely disappeared during the hospital stay and reappeared after coming home. I guess it was all due to that complementary oxygen...
Maybe you should be checked for sleep apnea?
I'm also in a relapse period and I have PLEX every ten days which keep me afloat. Here in France, PLEX and IVIGs are used only for patients in crisis or as a support treatment waiting for steroids or immunosuppressants (Immuran for ex) to kick in.
I hope you will see some improvement in the near future.
Maurice.
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