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Old 03-15-2010, 05:51 PM
StillTrying StillTrying is offline
Junior Member
 
Join Date: Mar 2010
Location: Rapid City, South Dakota
Posts: 8
15 yr Member
StillTrying StillTrying is offline
Junior Member
 
Join Date: Mar 2010
Location: Rapid City, South Dakota
Posts: 8
15 yr Member
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Quote:
Originally Posted by elmodo View Post
Hi sk8ter: My daughter has RSD. She lives in OC. I do all the research as she is in a complete state of fear right now. I had taken her to a wellness doctor to try something different than nerve blocks and ketamine (they don't seem to work very well for her, and the pain specialists are trying very hard to insert an SCS already). He had prescribed naltrexone in pill form and also wanted to do DMSO IV's. She had started taking the naltrexone. Unfortunately, the pain specialists convinced her this doctor is a quack and now she is scared and won't take or try anything coming from him. I do believe that the naltrexone was helping her but she didn't stay on it long enough. I need to be able to convince her to try it again for a longer period of time but I need support and apparently you live in OC also, CA. How come nobody is talking about DMSO?????? Can you explain to me what you mean by you have it done in a liquid to titrate? Maybe that would work better for her. Who is your doctor who prescribed it? Can you tell me? Is it allowed on this site? I am new here, but will try anything to help my daughter who has a 5 months old baby (was diagnosed during pregnancy)
I know that most docs are saying that a SCS can help and I wouldnt recommend it just from my experience. Especially if they are wanting to implant this via surgery because surgery usually gives the rsd a chance to pop up somewhere else. It does work for some people but for others not so much.
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