My 12 year old daughter was also diagnosed with syringohydromyelia in her spine between T8 and T9. She is having severe headaches and dizziness. She has had 3 X-Rays and 2 MRI's.

The next step is going to Seattle Childrens Hospital. The more I read the more worried I'm getting. She has been a competitive gymnast for 4 years now. She is very flexible and strong. She is currently competing ( or was ) level 7.
States is this weekend and it looks as if she will not be going. She is very upset. She was going to quit gym and just do junior rodeos, wanted to end gymnastics strong. Safety and health are far more important! Has anyone had this disease and if so do you have any info or anything you could share with us?

Thanks, kim