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Old 03-16-2010, 12:05 AM
SherylJ SherylJ is offline
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Join Date: Oct 2006
Posts: 170
15 yr Member
SherylJ SherylJ is offline
Member
 
Join Date: Oct 2006
Posts: 170
15 yr Member
Default why have so many national PD orgs period?

[SIZE="5"]Linda asks:So I'm wondering why duplicate efforts?

I have wondered this same thing for a long time, but on a broader scale than just clinical trials. Can anyone tell me why we need so many national PD organizations duplicating efforts and wasting time and money while the clock is ticking down for those of us desperately hanging on for the cure.
At the very least, each org could specialize in what it does best, whether research, providing direct services to patients and caregivers, or whatever.

I agree wholeheartedly with Linda that we all need to pull together to achieve our shared goals. This means having the orgs meaningfully include PWP in any effort or program that affects us."


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