Hi Kate
Thanks for the welcome.
I was diagnosed by blood test by a savvy ophthalmologist in October 09 after consulting him for sudden onset double vision. Started Mestinon a few weeks later after seeing my first (unsatisfactory) neuro, but at least it got me the Mestinon. My condition deteriorated with all the usual extensive effects, almost to the point of needing intubation so spent Christmas in hospital receiving IVIg under the care of the neuro there who seems to know what he's about so I continue to see him. Left hospital on Mestinon, pred and Imuran and have made a wonderful recovery almost back to normal until this week only taking Mestinon as required since I was obviously overdosing as my condition improved. Now it's just my facial muscles and tongue that need to respond to the meds (neuro says this is often the case), but as long as I can see and breathe I figure I'm not doing too badly. I am learning to pace myself and not try to do 100 things at once when feeling at my best.
Best wishes
Marian