Quick update - In January had EMG & NCS ("mild bilateral S1 radiculopathies are present" and "no electrodiagnostic evidence for PN"), I was quickly scheduled for lumbar MRI which I canceled due to travel, cost, and I guess wanting to take things 1 step... Had skin biopsies after I got back which just came back last week confirming Small Fiber.
Note: I have never had ANY pain - just skin numbness and muscle weakness. And eye dryness, and "heavy" or tightness around eyes/eyelids.

Whole body partial numbness has persisted.

I've had some additional fatigue episodes - when they hit I'm weak for at least a day. Head/face, hands more recently have a "callous-type feeling" of dull, tightness - that is, face feels tight but no outward change or redness. And have had continuing leg weakness but that also waxes and wanes. A few days ago legs were weaker and I feared leg collapse if I did much more - but now back to mild weakness.

Also had incident in January of a big travel day and tried to keep it light, but did carry a 35# box about 10 minutes (a simple task by past standards), half way through I paused, and arm was trembling, then after wards I was quite fatigued for about 18 hours.

And a month ago noticed my heart beating stronger when at rest, that I could even "feel" the beat in my neck & head where only that would happen after exercise.

I have appointment tomorrow with Neuro. Any additional questions I should ask them??