Annie,
I think you are right about the reasons why a doctor would hesitate to give us a flexible dose of Mestinon.
And yes I am considering a second opinion right now, although I am starting to accept MG and don't need/want any further treatments beyond Mestinon. I would like to find a doctor who at least tries to understand what I am going through, and really tries to help.
My current neuro seems to have gotten to the point where he feels like I am "fixed" and so he doesnt need to listen to any new or continued symptoms I am having. And I feel like I should be reporting my symptoms, until I can work full time again, because my doctor said that since I have "mild" MG I should be able to live "normally" and work full time with no problems. It is not happening and I am finally not expecting it to.
I wouldn't be telling him of my continued symptoms if he hadn't told me that my MG is too mild for disability. I think I need to keep telling him so it is on the record (hopefully).
I hope you can talk soon.