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Elder
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Join Date: Jan 2008
Location: New Hampshire
Posts: 7,332
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Elder
Join Date: Jan 2008
Location: New Hampshire
Posts: 7,332
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Tysabri has proven deterimental to those who take immune suppression with it. They get extraordinarly ill, and several have died! There are STRICT protocols in place that if you are on Tysabri, the TOUCH folks will refuse to give your infusion if you are taking steroids most times, let alone chemo.
If you feel that Ty isnt working well for you, it may be time to come off of it, and do the wash out peroid, before you consider something like HyC, or other such high level treatments.
I am so sorry that things have progressed this far for you, and I am sure you are scared, and frustrated, but I dont believe any MD, even when gifted with a release, would risk your life, his license, and the fall out that would be created by your demise from such risky treatments.
Your MD has to face peer review, morbidity and mortality conferences, and has to answer to his bosses, colleges, and the license boards if he hurts you, let alone kills you.
Have you been to an MS center? They usually are up on the cutting edge of whats going on, and what can safely be done. I do hope you find better answers.
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RRMS 3/26/07 .
Betaseron 5/18/07 .
Elevated LFTs Beta DC 7/07
Copaxone 8/7/07 .
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