I am so glad to know that there are others like me. I know this disease is relatively new. I am now seeing a psychiatrist to treat the depression and panic attacks I have. It somewhat works. for now at least. The pain is still there and if my clothes arent silk.... well I cry the first 30 minute I am in them. My doctor here seems to be getting frustrated because he swears my scs was supposed to help. It made it worse. And now I am having a hard time with him giving me other pain medication that might work. I know there is stronger pain meds out there. I dont want the narcotic pump because that means another surgery and more than likely the rsd spreading to the incision site like it did with my scs.
I have researched and researched everything I possibly can that will help me. Right now I feel like noone will help me and we wont be able to find a doctor that will be able to put me into remission. I want my life back. I cant even huug my husband.

I feel silly saying this because I know there are people with it worse on here, such as they are restricted to a wheel chair or mobility is gone. And my heart truly goes out to them.

I am only 24 years old and I want a family more than anytihng but until I get this rsd into remision I cant do anything. I cant start my career I cant start a family, I cant even seem to get dressed to take my dog for a walk. I dont know what to do anymore.

My husbands supervisors at work (military) are trying everything they can to get me referred to walter reed in maryland to see some sort of specialist because the military is treating rsd and pain disorders with the ketamine.

I am currently taking 12 pills a day....3 times a day. Im afraid thats going to effect me in the long run. If I can just find a doctor that will do the low dose ketamine infusion (not the coma) I honestly in my heart believe that is what will put this into remission. I really believe that. Its just a matter of finding him,