View Single Post
Old 03-21-2010, 08:10 PM
Muffy1219 Muffy1219 is offline
Junior Member
 
Join Date: Jul 2009
Location: Linwood, North Carolina
Posts: 13
10 yr Member
Muffy1219 Muffy1219 is offline
Junior Member
 
Join Date: Jul 2009
Location: Linwood, North Carolina
Posts: 13
10 yr Member
Default

I have peripheal neuropathy, kind of an unusual case since we cannot find one pain med that works on me & that included a series of epidurals. I fall asleep purely from exhaustion because when I get in that bed at night I cannot lie in one position more than a few minutes. Its horrible.

I spent most of the last 2 yrs. in bed. Always with changes, skin problems, hives more intense pain. Its been crazy. SO we are now trying diet & exercise to see if I drop some weight & stop eating the foods that I have allergies too, whats going to happen.

To be honest I have had enough doctoring & enough setbacks from trying all these medicines that have made me sick. When I stop taking a med that makes me sick by that time its irritated my nerves & I'm in bed from anywhere from 3 days to 3 months. I decided to try the diet thing because Doc wants to insert an under the skin pain pump & see if that would work>>>>I'm not ready for that.

My pain use to come in little episodes, now in the last 4 months I use to have maybe 5 good days ......this month that ended. The pain( I mean intense #10 Pain) won't leave. SO I drug myself to the YMCA. My ex got himself a membership thru his insurance co.. While there the director gave me a free 2 weeks just for us to see if I could get there & get in the pool. Have not been able to drive for 4 yrs. so ex takes care of me & my disabled Veteran hubby.

Well I did it. Altho I had to wait 5 days before I could go cause I got sick & could not walk at all. But as soon as I felt better we went. The 1st week I spent 4 days in the pool. I use to teach water aerobics for seniors & heavy women so I knew what to do. BUT I'm out of shape so bad from being in bed everyday so objective was to go & just move.......carefully & slowly. IT worked & I was completely freaked out. All that night time tension in my legs, charlie horses, muscles jumping around & aching so terribly bad. IT ALL STOPPED.

Now it did nothing for the peripheal nueropathy in my feet & hands but just losing that aching in my legs helped me to calm down more at night. I stopped going only because I have not got the money yet to buy a membership & guess what the pain is all back. Also I noticed going every other day helped but if I missed 2 days in between they ached a bit.

Its really hard to drag myself out of the house for this. I don't go out. SO getting there w/ my cane or walker & getting undressed & then getting in the pool & then out & trying to get dressed after the swim. Well I just made up my mind no matter how much it hurts I'm gonna do it & see where it gets me in 6 months. There is a private handicapped shower bathroom so I have a chair in there so I can sit down while dressing. I bought pool shoes so I don't fall on the tiles & I also wear them right into the pool.

My work out: Still working on this. BUT...its important to make your time in the pool beneficial so ya gotta get aerobic. I walk in the pool for 30-35 minutes pushing water. Then 10- 15 minutes of easy swimming not a lot with my legs in the deep end. My feet hurt more as I am in the pool & when I get out I need help walking cause they hurt. Temp of pool is 85.

I stay away from heat cause I have a huge deep whirlpool/ jet tub at home. The jets hurt my legs & forget hot water dips. The heat really hurts my feet.
Hot tub is just too hot for me.

Believe me some days there I hated going out of my houser....but that pain pump idea is pushing me to try this. I will buy the membership April 1st. I will try to go everyday. Getting up & getting a shower (very hard for me) & getting dressed & out of the house everyday is gonna be a good start for me to break away from this ...."I'll never get better "attitude.

I also worked out on the circuit, nothing like the weights I use to be able to handle....remember the idea was to just move around & get my body working. I have no stamina at all. I did 10lbs. on most of the machines & needed help on & off of them. Some I just had to pull the pin with no weight. Most importantly was motion & getting the muscles to wake up cause mine are gone.After swimming and such I just felt stronger & even managed to get a few things done at home. I can't clean house anymore. I just can't stand at all & most of the time the pain is so intense that it makes me sick to my stomach.

My age is 52.
Muffy1219 is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
DejaVu (05-26-2010), Dmom3005 (03-23-2010), Doody (05-25-2010), numbum46 (04-01-2010), tamiloo (04-23-2010)