Hi Abrown,
Pain control has made a big difference for me while I have waited and waited for WC to approve 10 day outpatient ketamine infusions and for a spot in a physician's office for the treatments. Have you tried something like Fentanyl patches, which deliver opiod meds to your system all the time? I recently titrated off of them, just to prove to myself that I could, and to see what kind of pain my body was still in. It was really ugly. So I am back on them. They work extremely well I discovered. I also take a muscle relaxer and Ambien CR to sleep at night. Those meds usually work also, and when they don't, I keep oral Oxycodones nearby to help. Other meds I am on include Cymbalta, Topamax and high blood pressure meds because of the pain.
I've been sick now for 3 and a half years. It's taken a long time for me to work out the meds and to figure out the best system for dealing with the pain. My personal care physician is awesome because he has helped me with most of what I have needed.
Many times I find that physical activity is a good diversion, too. My headaches don't hurt as bad if I go out and take a walk. And vitamins have helped with my energy levels - make sure you are getting enough Vit C and Calcium and Iron, etc. I take a lot of supplements, many I found out about on this board.
Try to get to the very best doctor that you can in your area to help you with your RSD. Get rid of the SCS when you can (if that's what you want). Help yourself the best you can.
I hope my message has helped you a little. Please keep us informed on how you are doing.
XOXOXO Sandy
Quote:
Originally Posted by abrown176
I know were not suppose to question God, but I'm really really in a bad place. The monster RSD has not only reuined me but it feels like it has taken all my friends away. No one wants to come over and see any body not able to do for thereselves. If it wasn't enough to have fallen last month and end up with a cast, I just twisted my knee on my only good leg. My husband had to go on too work, cause you aint calling out unless your dead. So now its baths for the kids and trying to hide back the tears from them. I want so bad just to know what I ever did to deseve this pain. I just have to try and trust that God will not put more on you than you can handle. I just want to ball up and cry. I feel as though I have nobody. I know he has to work cause he's the only income. I just don't know how to manage the pain anymore. I'm sorry to be so whinny, but it just has been one thing after another. Falling and ripping my tendon in my RSD foot and ripping my battery lose, and now this. All in one month. I can't go to the ER and have my knee checked cause no babysitter. I just need to get them to bed and take a sleeping pill and maybe feel better in the morning. Thanks for anybody reading this. Its nice sometimes just to be able to vent. Thanks!
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