View Single Post
Old 03-22-2010, 06:04 PM
jetjock1's Avatar
jetjock1 jetjock1 is offline
Junior Member
 
Join Date: Feb 2010
Posts: 10
10 yr Member
jetjock1 jetjock1 is offline
Junior Member
jetjock1's Avatar
 
Join Date: Feb 2010
Posts: 10
10 yr Member
Mad Have your PM dr. write a letter!!

Quote:
Originally Posted by CZZ74 View Post
Hi Everyone, Please help me. I have been many place on this 7 year journey with rsd but none as dark as this.

I am back to pre coma pain and then some,

I am hanging on by my fingernails day by day, trying not to dial 911 each day because I know they wont know what to do with me when they get me- but it is inevitable.

please send advise for emergency room. What can I do to get admitted for a few days of iv pain medication? My meds have not been working for several weeks now.

My pain management doctor has tried everything and almost killed me last week with a magnesium intravenous infusion which I had an allergic reaction to-
my brain was literally on fire for over 10 minutes, I kept calling out to my sister to get the doctor, my brain was like lava-

thank God she was there , I think I might have been brain dead other wise.

Please please give me your advice about the emergency room what to say to get care- they usually think i am drug seeking when they see my list of meds-
and please share with me if you have every experienced the brain burning episode,

there was very Little on the Internet about it except, mercury poisoning.

I do know that my body temperature had dropped to 91 degrees during the infusion.
(my pm was watching it with a tape)
so i had hypothermia. my brain was literally burring.

thanks so much for reading this and thank you in advance for helping me. dc
Jo*Mar is right. If you have a document from your pm doctor you have a much better chance for legitimacy. I have been in the ER many times and the letter has been a god-send. They will keep it on file. It just drives me nuts at how poorly we RSD people get treated. If you went in and told them you have cancer and the pain was excruciating they would be all over it. Most ER dr.'s are clueless on the facts of RSD pain. Another thing you should try if it happens during the day is have your PM doc call ahead for you. Then they will be expecting you. You have to be pro-active in making sure they understand you are legit. (Why do we have to prove our legitimacy all the time!!!?????) Arrrggggggh!
jetjock1 is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Burnbabyburn (07-09-2014), CZZ74 (03-27-2010), eevo61 (07-30-2014), Kakimbo (03-24-2010), wswells (04-17-2010)