Member
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Join Date: Jul 2009
Posts: 231
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Member
Join Date: Jul 2009
Posts: 231
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I believe Im scheduled for next tuesday, noone has contacted me except a pharmacy that questioned my weight and a few other things.
I thought by now the home infusion person would have touched base, but I guess they wont till a few days before.
I think its 2 days, approx 5-6 hours per day.
the past few days, Ive never felt fatigue like I have. Kinda weird. I get up, ready to rock, then within an hour or two, I feel like going to bed, so Im not sure if this is MG related, or just coming down off the IVIG, or just old fat man syndrome.
I now try to dismiss anything is related to MG, so I dont harp on this disease.
I am going to check in with someone regarding arthritis, since I notice the stiffness in my hands is becoming a huge nuisance for me.
hope you guys are feeling strong today, and every day.
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