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Old 03-23-2010, 01:38 PM
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dreambeliever128 dreambeliever128 is offline
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Join Date: Nov 2006
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dreambeliever128 dreambeliever128 is offline
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dreambeliever128's Avatar
 
Join Date: Nov 2006
Posts: 2,088
15 yr Member
Default Hooshmand puzzle 127-CRPS and Volvodyna

I realize that this is older information but it touches on what a lot of the women and men are going through on here, me being one of them.

I have dealt with pelvic pain for over 8 years. I was diagnosed with Interstital Cystitis first and the Urologist and Gynocologist did treat me for that and did get it calmed down.

As far as the pelvic pain, inside, they have no ideal what to do for it. They have all said that my PCP is doing exactly what they would do. He gives me shots inside and out. They don't last as long now so that's why I went back to see 2 new Gynocolgist and they said the same thing. Keep getting the shots. They can't explain the pelvic pain that I am dealing with. Some earlier had said it was CRPS inside. I don't know. I just know that the Drs. I have seen are not even willing to try and figure out what is causing the pelvic pain nor do they care to. That's why I feel some Drs. deserve no money at all for our care. The one I saw last week spent all of 15 minutes with me only to tell me he had no ideal what was causing my pain, no testing or anything. He got over 200. for that visit. It's sickening that we have no say over them getting paid for these wasted visits.

Back to the pelvic pain, when Bill was living he was very understanding that we could not have much of a sex life. He was angry about the Drs. not even trying to help me and leaving me just as I was.

I am bringing this subject up because I know a lot of women are dealing with the pelvic pain and I was wondering what kind of meds or help they have gotten to help relieve it.

I know this is a touchy subject but I don't get embarassed about talking about it anymore. I guess that's from seeing so many idiot Drs. and having to repeat what I am going through. It's a problem that several of us are dealing with and if we can talk about the treatments we have gotten for it then it might help some of us find help through those treatments.

I have also had lidocaine put into my bladder and been on elmeron which didn't help any. The injections seem to help the most but they aren't lasting as long anymore.

I was wondering too if anyone has had blocks to help with pelvic pain, I know they are given for this.

Any of you that are dealing with pelvic pain, inside and out, give me some ideals here.

Thanks,
Ada
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