I like your description Kathy - very simple yet effective.
When I'm with my friends I try NOT to talk about my RSD. It's too depressing. I'd much rather talk about other things. It helps get my mind off of my illness and all the pain. And no one wants to hear about it, anyway. So I tend to keep my RSD to myself for the most part when I'm out socially. That's what this board is helpful for. When I need to talk about my RSD I come here. (Not that my friends don't care - they do, very much so. I just don't want to ruin good times with talk of MY issues very often - it's a bore!...)
When I first became sick, I joined the RSDSA. My membership package included some great pamphets that I shared with my husband that helped him better understand my pain and other symptoms. He has remained my best friend and greatest supporter throughout this saga...3 and a half years and still counting....
Sandy
Quote:
Originally Posted by keep smilin
Great ..very informative and a big help in the description of our 4 headed friend... We can also add that unfortuantely you have been diagnosised with a neuromuscular condition which is very painful..there is no cure but lots of hope and pain relief treaments offered..Ask them to keep praying and much hope for future advancements..finally saying..that you will be okay as long as they support you and keep their love for you flowing as you will need it...
Lets us know how else we can help you!!
Kathy  |