My daughter was first diagnosed with RSD in 1997 at the age of 10 following a broken wrist. It has become a series of flares with skin lesions covering her entire body that burn, erupt and bleed. IN addition, she has internal involvement as well including the GI tract with Gastro Paresis and lesions in her throat and GI. She has lung involvment and kidney as well, with constant blood in her urine. Looking for a great RSD doc currently as most dont know what to do at this point. Nerve blocks worked in 1997 but they dont know what to do at this point. Dr Schwartzman not scheduling appts until 2012 and we cant wait. Anyone have any suggestions? Glad you are all here