I have been dx'd with fibro, but in the past year I have gone rapidly downhill. My current general doc says I'm fine, I'm seeing a neuro on thrus, any ideas? tips? I have made a list for the neuro that has symptoms that has come from journaling just so I can remember all the *(#$^&@ that happens in my day. I can't believe that I have been complaining about all of this for over a year and my general dr says I'm fine. I don't feel fine.

My current symptoms include (but are not limited to) Leaving the bullets in for easier reading:
• Fatigue, Muscle pain (Cannot carry a backpack due to muscle tenderness/pain in the shoulder upper back area), Muscle weakness (Stumbling when walking, Not having the strength I used to, can’t lift a saddle onto the back of a horse, Easily winded)
• Eyes twitching when looking up or to the side, Tremors (in hands & random large muscle groups)
• Flushing in face, Nausea, Feeling like I am swallowing around something, Sense of taste is different (Food taste blander, No longer like favorite foods)
• Constipation, Abdominal swelling, Weight gain
• Handwriting randomly changes, Can’t use a pencil sharpener/screwdriver without pain and swelling of hands the next day. (Can’t carry a loaded grocery bag without pain in hands from the plastic bag)
• Language (Losing works, almost stuttering when I am trying to say something as I lose the word I wanted to use, In the middle of speaking forget what I was talking about or what I was going to say, Unable to remember common names, Speech is starting to slur, I used to have a very clear speaking voice and that is changing), Taking longer to compose sentences both in speech and in writing, Unable to remember what I did earlier in the day if I didn’t write it down ( This includes phone calls, what I ate, what I am suppose to be doing at different times of the day)
• Vertigo – constant feel of motion no matter what I am doing,
• Falling backwards while standing if I am not leaning on anything
• Constantly feeling like I have to readjust myself to stay upright
• Cannot walk a straight line in an open space
• Walk “point-to-point” always having something in touching distance
• Need assistance when walking more than 10’ in an open space
• Cannot do a quick walk through a grocery store without a cart to help with balance
• Feel like I am falling over when I am sitting still and proper in a chair without arms and I’m not leaning against anything
• Cannot turn my head while driving without feeling like I am drifting in my lane/into another lane
• Cannot bend over without feeling like I will fall over, or I am falling over
• Need assistance to get back up from on the ground, cannot stand without assistance without tipping or feeling like I am falling
• Can no longer ride my horse unassisted (ground help or lunge line, I have been riding for 35 yrs)
o Fell of mounting block, now need assistance getting on and getting off
o Cannot ride anything faster than a good walk
o Cannot circle the horse without feeling like I am falling into the circle or still circling when the horse is moving forward
o Feel like I am moving in one space, while the horse is moving in another, timing is completely off, feel disjointed
• Sleep disturbances
o Feeling of being paralyzed
o Feeling of imminent attack or dread
o Pins and needle feeling throughout all of my body
o Restless sleep due to pain waking me up
o Unable to sleep the night through due to pain
• Zoning out
o While awake feeling the “pins-and-needles” feeling
o Seeing people that do not exist out of the corner of my eye
o Feeling like I am dreaming when I am awake
• “Attacks” or “Episodes”
o Start with my dog whining at me
o In about 15-30 minutes later I become flushed
o Huge feeling of being dislocated from my space
o Speech becomes slurred
o Extreme spinning
o Unable to keep my eyes open
o Must find a place to rest and sleep
Sleep lasts anywhere from 45 minutes to 3 hours
• Numbness and/or tingling in random parts of my body
o Typically happening in my lips, face, soles of my feet
• Skin/parts of my body feeling “thick” or numb
• Can feel my pulse
• Sometimes have a loud ringing noise in my ears
• Can hear my pulse in my ears (like a rushing water or wind noise, seashell held up to my ear type noise)