dont you hate when good or great news turns out to be more of a worry, than if they had just given you a diagnosis? I know exactly how you feel. For years, I was told its "anxiety" or "migraines" or "calm down" when I KNEW something was wrong!
there are more than 100 disease that can mimic MS, including the brain lesions. It may be time to see an MS clinic to get to the bottom of some of it. Even with a negative dx on hand, they can help you sort it out.
I do hope you get some answers. its awful to know something is wrong, and not be able to find someone to help you hunt.