Quote:
Originally Posted by Debby
"After having this for so long I just try to blow things off as whatever,I don't even bother telling my family or friends [who are supportive of my situation] about the new adventures of RSD, because I just think it's all just old for them to have to listen to.Do you ever think that it just gets old? Or that they just have listened to it for so long?"
I was just talking about this with my BF who lives in NW Iowa(I live in CA now). I finally told her a few weeks ago about these horrible flares I have been having. And I said if you have noticed that for a long long time I haven't actually talked much about having RSD & pain etc. And she said I know & she had been wondering if it was gone or what was going on. I had told her I finally figured out that there is only just so much to be said & then it gets old, real fast & when nothing new is happening what is the point. Also having good pain control has helped & that I have had for the Hit part ever since the end of 2005. So I agree, it has to get old to them because it sure as heck gets old for me. And there is only so much to be said about it...............
I had IBS way before I ever had RSD. In fact I have had probs since I was a kid. Constipated all the time & then after gal bladder removal in 1981 loose to diarreha........... Now due to years on pain meds back to constipation. Thank Goodness for Miralax. or it might take dynamite *LOL* I also had heart burn off & on for years & years........I took Nexium for years now have been off of it for 2 yrs almost. I use Tums once in a while is all now.
Debby
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Hi Debbie, it was good to hear that you too feel that you RSD info. gets old to our families. The problem that I have is that my family wants to know what is happening with my health all the time. I tell them I'm fine, but they can tell when I'm having a bad day. I was kind of regulated for quite a few years until about 2 years ago, that is when the stomach problems began. I had terrible pain in my stomach and I couldn't go to the bathroom[constipation] First I was diagnosed with IBS but the pain was still terrible. Then my blood pressure was just getting higher and higher. The Dr. put me in the hospital and they found erosion in the esophogus and erosion in my intestines. But none of the meds they have tried on me work. With in the last few months I have the rsd discoloration on my skin of my abdomin. Does the Miralax really work? I hate drinking that stuff. My Dr. wants to put me in the hospital anytime I haven't gone to the bathroom for 3 or more days. NO THANKS!
your friend wendy