Quote:
Originally Posted by Wilbyfree
Nutty.....I am with you 100% on the attitude. I think that is why for me I use the denial technique. I can't imagine living the rest of my life with this pain, so I literally don't imagine it. I do get really scared when I hear people have had this for decades and how it has spread. You just know when your body is reeking havoc, and yet I just tell myself to live in the moment and challenge each day as it comes. I can't compare myself to what I was years ago, even without this disease, life is supposed to change. Life altering...absolutely but consuming one's life is a choice. It was difficult for me to come to this forum, my Dr. told me I needed to join a support group. I cannot talk about the pain I have. I do everything in my power to hide it, let's face it most people really don't want to hear about pain issues so I save my energy for things that relinquish the heart and soul. I like you, have great compassion for all who suffer from this, I know your pain, I live it. The doctors that harrass people and insurance companies who deny people is totally uphauling to me. I too have been through that, but in my heart, I also know what I know, and I know God knows and I just don't worry much beyond that. I pray everynight for everyone on this forum, for those who are lost that they will find a way and for those who have found a way to share and encourage each other through the difficult times. You are all a great support for each other and for me. By praying I feel as though I am able to contribute something. God Bless and wishing you a pain free day.
Jeanie
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Jeanie~
Your words are perfect and eliquent... describing how you felt and how you cope with the everyday..all day..rest of our life pain... is not the easy way to cope but I think the best way to cope..see when all of us have this insurmountable RSD pain constantly..everyday..for years, it breaks us down..we are literially mush on the ground..and how can it not do that to us..but the strong willed, (me, I am a bit stubborn...), we must refuse to wallow in it as that is counterproductive.. we only get this one shot at life...live in the moment, manage in the moment and you are right...don't look ahead as none of know what tomorrow will bring..!! You are right..allow ourselves to feel sad the hard part, but it is a must that we get back up fighting and find the happy parts within ourselves.. our hearts and our future.. it's there we just have to spread the ugly weeds apart to find it..In the long run we will all benefit having found that warmth within us and then we can share it with those who are having trouble getting thru those ugly weeds, warm part in their lives..Once we share the love it will come back to us 10 fold and RSD will not be able to impact that part of us.. thats the wonderful sweet part and It is a win win situation..
Much love to all...and thank you Jeanie for your awesome post!!!
Kathy

