I am going to have to accept that it is simply, 'autoimmune disease'. If I were not a stickler, I would say, it was Sjogren's, but my antibodies are negative for that. The docs say that is what it is, but I think it is more of a diagnosis to pacify me, which it doesn't. If they feel it is Sjogren's, then why not Mixed Connective? One tells me this, another that, and really no one knows.

I think they either need to increase the frequency of IVIG, or add something like Cellcept. I am tooooo scared of Rituxan and I read the results are not that great with Rituxan.

I just hope they are not missing the forest for the trees.

I am wondering if they are going to recommend fludrocortisone to increase your BP?

I do hope you get some answers....Limbo stinks, unless it is a dance!